About Asociación Anita
Asociación Anita is a non-profit charity founded by a group of friends of Anita's parents to raise funds to assist in the research and development of treatments related to malignant germ cell tumors in children and teenagers.
Asociación Benéfica Anita was born out of friendship and solidarity as a result of the total desperation of Anita's parents due to the lack of treatments to cure their daughter; parents who see how their daughter is deteriorating little by little over the years due to the toxic and aggressive treatments her daughter is administered (chemotherapy, radiotherapy and endless operations) to try to stop a tumor, which apparently responds to the treatment, but it is impossible to be fully eradicated.
As it is a rare type of tumor, the lines of research are very scarce. The lack of resources for the development of drugs, clinical trials and other actions necessary to find a definitive solution, force affected families, such as Anita's, to build an alternative path that guarantees treatment, that is, hope, for their children and many other children in the same situation.
As there are no specific drugs for children, doctors have to manage as best they can to adapt adult protocols to children, and this does not work, neither adult cancer is the same as children's, nor is a child the same as an adult.
It is critical to develop new avenues of research to find less aggressive and more effective treatments for children, and thus give hopeto the thousands of children around the world who have developmental cancer, while improving the quality of life of those who overcome the disease.
But since rare diseases receive virtually no funding from any entity, these parents are forced to fight with all their strength and with whatever means they have in order to be able to try to save them, and in the best case scenario, to see their children grow up.
Anita's parents, despite having lost everything, feel the need to continue fighting for all the children who are sick today and those who will be sick tomorrow, and to give hope to all the children and teenagers in the world.
This hope today is called Asociación Anita, and from this website we want everyone to learn about our cause and to join the legacy of our beautiful and sweet Anita.
Carolina Amado - President of the Asociación Benéfica Anita
* Asociación Benéfica Anita regulates its activities in accordance with the provisions of Law 4/2008 of April 24, 2008, of the third book of the Civil Code of Catalonia, relating to legal persons; the Organic Law 1/2002 of March 22, 2002, regulating the right of association, and its statutes.
Board of Directors
Carolina
Amado Vega
President Board of Directors
Anita's Mother
Gonzalo
Trias de Bes Quiñones de León
Secretary Board of Directors
Founding Partner
Maria
De Camps Chalbaud
Treasurer Board of Directors
Founding Partner
Team
Dr. Jaume
Mora Graupera
Scientific Director
Project Advisor with Sant Joan de Déu hospital
Anita's Doctor
Nicolas
Amado Vega
Storytelling Consultant,
Branding & Digital Strategy
Anita's Uncle
Founders
Josep
Coll Rodriguez
Founder
Cristóbal
Calzado Pujol
Founder
Cristina
Jorge Mestre
Founder
MAIN BENEFITS THAT WE BRING TO SOCIETY
CONTRIBUTE
To contribute to the improvement of the health and well-being of children and teenagers, promoting, supporting and coordinating scientific research and innovation in order to develop new treatments and medical technologies that improve their quality of life.
AWARENESS
To make society aware of the importance of generating a strong individual commitment to scientific research, and to those "rare" diseases that do not receive funding of any kind from governments, institutions and large companies.
BROADCAST
To spread knowledge and educate about the main characteristics of childhood "Developmental Cancer". To help identify early symptoms and promote research to ensure better support for patients and their families.
COORDINATE
Coordinate local and international funding efforts to initiate a 5-year Advanced Research Program, led by the Sant Joan de Déu Research Foundation, with the goal of making a significant impact on the health and well-being of children and teenagers worldwide.
INSPIRE
To show society that together, and with every tiny individual effort, we can achieve great things for humanity (to alleviate human suffering), even if at first sight they seem IMPOSSIBLE: every micro-effort builds a better reality for everyone.
CHAMPION
To champion the cause for a cure for childhood "Germ Cell Tumor" worldwide, promoting international collaboration so that every breakthrough and discovery can save the lives of children and teenagers around the world.