Spanish Registry of Childhood Tumors RETI-SEHOP
OBJECTIVE
To compile and maintain a complete and accurate database on cancer cases in children in Spain.
RELEVANCE
To be able to provide valuable information in order to boost research, improve medical care and contribute to a better understanding and management of childhood cancer in Spain.
STATUS AND SCOPE
ACTIVE
The program is held at the Faculty of Medicine of the University of Valencia in collaboration with SEHOP.
PROJECT START: 2020
BUDGET
12,000 € per year
Dr. Ofelia Cruz Martínez, Pediatric Oncologist, Head of the Oncology Department.
"To advance in childhood cancer research it is essential to know its dimension. The Spanish Registry of Childhood Tumors is a scientific project that collects incidence and survival data on childhood cancer patients from all the hospitals that participate in it; it analyzes the results and broadcast them to researchers. With this information we can evaluate the effects of treatment on our patients: without this knowledge it is impossible to make progress.".
RETI-SEHOP SPANISH REGISTRY OF CHILDHOOD TUMORS
Since 2021, the Asociación Anita collaborates through the Enriqueta Villavecchia Foundation by financing the RETI-SEHOP (Registro Español de Tumores Infantiles - Sociedad Española de Hematología y Oncología Pediátricas), which is the only registry tool for childhood developmental cancer in the whole of Spain. This scientific registry makes it possible to monitor the results of pediatric oncology in Spain and compare them with Europe.
RETI is connected to the 47 pediatric oncology units in the country, where pediatric oncologists send the cases, subject to parental authorization and signed consent. This allows us to carefully collect the incidence and evolution of new childhood cancer cases each year. Networking and collaboration with pediatric oncologists facilitates epidemiological research, helping to improve the care of children and young people with oncological diseases in Spain.
According to data from the latest RETI report, childhood cancer survival currently stands at 81%. Forty-one years ago, when RETI-SEHOP was founded, it was only 55%.
Behind the statistics, there is a network of people interconnected and working as a team to improve the prevention, diagnosis and treatment of the disease.
The ultimate goal of RETI is to improve the care of every child and young person facing this disease.
The collaboration of the Asociación Anita in this grant supports this important work for the benefit of pediatric cancer patients in Spain.
